Joining forces to call for overhaul of the system to reduce preventable deaths

Joining forces to call for overhaul of the system to reduce preventable deaths

On Monday 21st July, 2025, we joined forces with charities, bereaved family members, campaigners and academics to call for overhaul of the system designed to learn from the deaths of autistic people and people with learning disabilities and reduce preventable deaths. Read the letter – and add your support – below. 

Our full press release can be found here

Signed by charities, bereaved family members, campaigners and academics:

  • Chris Packham, Broadcaster and Environmental Campaigner
  • Lucy Hawking, Autism Action Ambassador
  • Professor Sir Simon Baron-Cohen, Director of the Autism Research Centre
  • Dr George Julian, Open Justice Journalist
  • Lisa Wolff, Mum and Advocate for Abbi Smith, Forever 26
  • Greg Wolff, Stepdad to Abbi Smith
  • Julia Hopper (Caro), Bereaved Mother of Chris Nota and Lead Campaigner for Inclusion of Neurodivergence in the Lampard Inquiry
  • Sharren Bridges, Mum and advocate for Jen Bridges-Chalkley, forever 17.
  • Katherine Eastland, Parent of Jessie Eastland-Seares
  • Beverley Dawkins OBE, Independent Advocate and Independent Chair of the Clive Treacey Review
  • Dr Dawn Cavanagh, Stolen Lives
  • Professor Sara Ryan, Bereaved Parent
  • Elaine Clarke, Bereaved Sister of Clive Treacey
  • Professor David Abbott, Chair in Social Policy, University of Bristol
  • Dr Keri-Michele Lodge, Sibling Carer and Consultant Learning Disability Psychiatrist,
  • Leeds and York Partnership NHS Foundation Trust
  • Beth Tarleton, Senior Lecturer, School for Policy Studies, University of Bristol
  • Tom Porter, Centre Head, Norah Fry Centre for Disability Studies, University of Bristol
  • Dr Rachel Moseley, Principal Academic in Psychology, Bournemouth University
  • Dr Sarah Cassidy, Associate Professor, University of Nottingham
  • Iarfhlaith O’Connell, Research and Projects Coordinator, My Life My Choice
  • Dr Elizabeth Herrieven, Consultant in Emergency Medicine
  • Dr Alison Lennox, Consultant Neurodevelopmental Psychiatrist
  • Dr Beth Stone, Lecturer in Disability Studies, School for Policy Studies, University of Bristol
  • Alexis Quinn, RRN Manager, Restraint Reduction Network
  • Chris Hatton, Professor of Social Care, Manchester Metropolitan University

 

Additional supporters:

  • Julie Newcombe
  • Kelly Anderson
  • Madeleine Deane
  • Ayesha Mahmud
  • Kathleen Conkie
  • Mark Humble
  • Karen Upton
  • Sam Carlisle
  • Daniel Marsden
  • Brenda Taynton
  • Chris Lodge
  • Sarah Westmore
  • Mollie Mattingly
  • Nathan Barber
  • Paula Wadmore
  • Dr Thomas Murphy
  • Kathryn McGreevy
  • Felicity Head
  • Erica O’Dowd

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