Charity sector calls out Government on ‘unacceptable’ autism policy

Joint statement:

Today the Government has responded to the House of Lords’ report, ‘Time to deliver: the Autism Act and the new autism strategy’. As the autism charity sector, we stand together to say the Government’s response is unacceptable.

We see no evidence that the Government intends to develop a new national autism strategy, or do anything meaningful in compliance with the Autism Act or in response to the House of Lords inquiry. Despite the legal requirement and the expiry of the existing strategy in June, no timeline is provided.  

Vague commitments will do nothing to address the real barriers autistic people face. Rather than acting on the House of Lords Committee’s clear recommendations, the Government’s response focuses on existing initiatives such as the NHS 10-Year Plan, which makes no mention of autistic people in its 171 pages. Once again, autism is lost in generic strategies, despite clear evidence of the distinct risks autistic people face and the need for specific, targeted, joined-up action. The House of Lords’ report articulates these risks powerfully.

Image reads: Today the Government has responded to the House of Lords' report, 'Time to deliver: the Autism Act and the new autism strategy. As the autism charity sector, we stand together to say the Government's response is unacceptable. The following logos are across the bottom: Ambitious About Autism, Autism Action, Autism Alliance, Autistica, National Autistic Society

The Autism Act inquiry received more written evidence than any House of Lords inquiry ever, demonstrating the strength of public feeling and the depth of lived experience available. Yet the Government’s response shows little understanding of the need to engage fully and meaningfully with autistic people and their families. References to community engagement in the Government’s response are conditional and dismissive.

Every day the Government delays meaningful action, autistic children, young people and adults will continue to face shorter life expectancy, higher risk of suicide, mental health crisis, exclusion from education, family breakdown, long-term confinement in mental health hospitals, and one of the lowest employment rates of any group in society. These outcomes are shameful.

We need to be very clear.

  • Not developing a new National Autism Strategy is a breach of statutory process. The Autism Act 2009 requires the Government to have a strategy and revise it.
  • This was the moment for the Government to step up and show that it cares about autistic people and their families. By failing to do so, it is sending the opposite message and condemning autistic people to a continuation of the last 16 years of failure. This will be remembered when new policies are revealed on SEND, employability, and welfare.
  • Harm is happening now. Autistic children, young people and adults have faced, and continue to face, systemic exclusion across society and public services. Failing to address this harm is a dereliction of responsibility and cannot go unchallenged.

 

We are ready to work with the Government to make this right.

Our CEO, Tom Purser, says:

“We have a real opportunity here to address over 15 years of failure under the Autism Act 2009, but the Government has failed to rise to the challenge. In its report, ‘Time to deliver’, the House of Lords Committee laid out what’s needed in a new autism strategy when the existing one runs out in June. Today’s Government response does not even commit to a timeline, relying instead on leaving the existing strategy in place – a strategy that has clearly not been fit for purpose.
 
“The extent of inequality autistic people face every day is shocking. The failings across all areas of government responsibility, from education and employment to health and social care, can only be addressed through specific actions with an autism focus. Relying on mainstream reform such as the NHS 10 Year Plan will continue the pattern of autistic people being overlooked and discriminated against.
 
“The stakes are too high to allow the current situation to continue. Autistic people face a reduced life expectancy, and suicide is understood to be the leading cause of death for autistic people without a learning disability.
 
“We urge the Government to reconsider – to commit to delivering a new autism strategy within a specific timeframe, in line with the House of Lords recommendations, and to make that a matter of the greatest urgency. Autistic people deserve better.”
Read the House of Lords report and find out why it’s so important for autism policy here.
 
Read today’s Government response here.

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