We expect the overdue LeDeR report to be published imminently
We’d like to say a big thank you to everybody who supported our public call for the LeDeR* report to be published. We are confident that making a noise about this issue is starting to make a difference.
If you added your name before August 21st, you’ll have received our email explaining that we’d had a response from Stephen Kinnock, Minister for Health and Social Care and are expecting publication of the LeDeR report and a written Ministerial Statement in early September.
As this is now imminent, we’re highlighting what we’ll be looking for in the new report and in the Minister’s statement. We must all hold the Government to account and reject empty words.
We will be looking for the following:
- Commitment to continuing the LeDeR programme for at least a further five years with on-time annual reporting.
- Making LeDeR a meaningful priority for Integrated Care Boards by putting it back in the ‘NHS Planning Guidance’.
- A national plan to improve the quality of LeDeR data and number of deaths reported, particularly for autistic people without a learning disability who are not yet being adequately included.
- A clear plan to learn from and act on the LeDeR data each year, with an ‘Action from Learning’ report that is more about saving lives than saving face.
How you can help
You can make a difference by talking about these issues online and writing to your MP if you have relevant experiences.
We all need to stand up and be counted now, so that fewer people need to be counted after they die preventable deaths. Together we are much harder to ignore.
* Need a refresher about what LeDeR is? More info here.
If you haven’t already added your name in support of this work, you can do so here:
